Some relevant references
Explanatory Documents
- American Cancer Society & WHO International Agency for Research on Cancer – The Cancer Atlas. Chapter 45: Policies & Legislation – Examples of countries that have laws relating to cancer prevention and control (2025)
- European Society for Medical Oncology – The Right to be Forgotten: ESMO Calls on EU Countries to Ensure (2023)
- European Commission – Report: Access to financial products for persons with a history of cancer in EU Member States (2022)
- European Cancer Meeting – Political Declaration and list of actions against Cancer recommended by a panel of European stakeholders (2022) – Right to be forgotten mentioned in the Trio Presidency of the EU Council
- KCE – Scientific Report: The right to be forgotten in breast cancers: New propositions (2022)
- European Commission – Commissioner Kyriakides’ speech at the webinar on the “Right to be forgotten” (2022)
- Irish Cancer Society – Access to Financial products report 2022.pdf (cancer.ie) (2022)
- Ciencia Viva, EACS and DKFZ – The Heidelberg Manifesto on European Cancer Research (2022)
- European Cancer Patient Coalition – Report: There is life after Cancer (2020)
- Youth Cancer Europe – White Paper on the needs of young people (2018)
- Youth Cancer Europe – The RTBF – A Constributor’s Perspective (2018)
Newspaper Articles
- EURACTIV – Oncological right to be forgotten remains an unresolved issue in the EU (2023)
- ULISES – From death to discrimination sentence: when surviving cancer equals being denied basic rights
- EURACTIV – Health brief – A double punishment for cancer survivors (2022)
- INDEPENDENT – Former child cancer patients denied mortgages and insurance demand ‘right to be forgotten’ (2022)
- The Portugal News – Raising awareness about health care rights in the EU (2019)
- BBC – Cancer insurance questions ‘must end for survivors’ (2018)
- Insurance Times – Cancer survivors battling for fairer travel premiums (2018)
- Insurance Edge – MPs and Charities Campaign to Change Insurance Rules on Cancer Declaration (2018)
- YouthTime Magazine – Right to be Forgotten (2018)
Videos
- ARD Panorama – Curent of Cancer: Disadvantaged for life? (2025)
- Cancer Patient Europe (CPE) Webinar Series: Survivorship – https://www.youtube.com/watch?v=4RKZzl5aozk (2024)
- European Cancer Summit (ECO) – 7. Cancer Survivors Matter: Championing the European Cancer Survivorship Day and Advancing the Right to Be Forgotten on Vimeo (2023)
- ECPC Annual Congress – 2nd Day 5th Session 4 MEUNIER (youtube.com) (2023)
- Cancer survivors should not pay twice | Françoise Meunier | TEDxMonteCarlo
- ECPC webinar – 14 Million Reasons to Discuss Life after Cancer: Implementing the Right to be Forgotten in Europe (2021)
- ECPC webinar – 20 Million Reasons to Discuss Life after Cancer: Establishing a European Cancer Survivorship Day (2021)
- ECPC webinar – There is Life After Cancer (youtube.com) (2020)
- Cancer Patient Video, Portugal – I have cancer. And then | The right to be forgotten for childhood cancer survivors (sicnoticias.pt) (2021)
- YCE – The Right to Be Forgotten – Creating Ripples Across Europe (2018)
Scientific Articles
- Tralongo, P., Cappuccio, F., Gori, S., Donato, V., Beretta, G., Elia, A., Romano, F., Iacono, M., Tralongo, A. C., Bordonaro, S., Di Mari, A., Rametta Giuliano, S., Buccafusca, G., Careri, M. C., & Santoro, A. (2023). Clinicians’ and patients’ perceptions and use of the word “cured” in cancer care: An Italian survey. Current Oncology, 30(2), 1332–1353. https://doi.org/10.3390/curroncol30020103
- I. Demeuse, D. Kavak, L. Nicolas, J. Ntumba Picamal et A. Wibaut, Garantir le droit à l’oubli des personnes survivantes du cancer : recours en vue de sa reconnaissance à l’échelle européenne, I. Rorive et V. van der Plancke (dir.), Equality Law Clinic, Faculté de Droit et de Criminologie, ULB, 2025, Equality Law Clinic (French version; English version)
- Tripi, Dalila, Marinelli, Susanna, Spadazzi, Federica, Guarnaccia, Francesca Romana, Zaami, Simona and Frati, Paola. “The law on oncological oblivion in the Italian and European context: How to best uphold the cancer patients’ rights to privacy and self-determination?” Open Medicine, vol. 20, no. 1, 2025, pp. 20251222. https://doi.org/10.1515/med-2025-1222
- Soetewey, A., Legrand, C., Denuit, M., & Silversmit, G. (2025). Semi-Markov modeling for disease incidence risk and duration. Biostatistics & Epidemiology, 9(1). https://doi.org/10.1080/24709360.2025.2517916
- N. Bougas Y. Dabakuyo, E. Assogba, et al. “Effects of the right to be forgotten for childhood or breast cancer survivors: results of a quasi-experimental study in France”. Journal of Cancer Survivorship. 2025 June. https://doi.org/10.1007/s11764-025-01830-4
- F. Meunier, G. Scocca, F. Tulkens ” Towards promoting a legal framework for ending discrimination against
cancer survivors. A human rights-centered approach”. Journal of Cancer Policy. 2025 March; 43. https://doi.org/10.1016/j.jcpo.2024.100527 - Faccioli, M. (2024). The Right to Oncological Oblivion in Law No. 193/2023: The Italian Approach to the Legal Protection of Cancer Survivors. BioLaw Journal – Rivista di BioDiritto, 1 , 75–93. https://doi.org/10.15168/2284-4503-2989
- Y. Stepanishyna, F. Meunier, D. Bron D. “Survivorship after Hodgkin lymphoma and the right to be forgotten”. Curr Opin Oncol. 2024 Sep 1;36(5):360-368. 10.1097/CCO.0000000000001072.
- M. Lawler, G. Scocca, F. Meunier, “Ending financial discrimination for cancer survivors: embedding the Right to be Forgotten in legislation across Europe”, The Lancet Oncology (August 2024), https://doi.org/10.1016/S1470-2045(24)00312-7
- F. Meunier, “Protecting cancer survivors from financial discrimination throughout the EU: A cross-European perspective.” European Journal of Cancer 209 (July 2024): https://doi.org/10.1016/j.ejca.2024.114238
- P.M Carrera, G. Curigliano, D. Santini, F. Meunier, et al. “ESMO expert consensus statements on the screening and management of financial toxicity in patients with cancer.” ESMO Open 9 (May, 2024): https://doi.org/10.1016/j.esmoop.2024.102992
- G. Scocca, F. Meunier, ‘There is Life after Cancer’: The Medical, Psychological, Social and Financial Challenges of Cancer Survivors at the End of Active Treatment. In book: Survivorship Care for Cancer Patients, Ed. S. Rauh, Springer, 2021. DOI: 10.1007/978-3-030-78648-9_3
- Lawler, Mark, and Françoise Meunier. “Don’t Make Cancer Survivors Pay Twice—the Right for Them to Be ‘Forgotten’ Should Be Law Everywhere.” BMJ, September 21, 2022, o2197.
- Scocca, Grazia, and Françoise Meunier. “Towards an EU Legislation on the Right to Be Forgotten to Access to Financial Services for Cancer Survivors.” European Journal of Cancer 162 (February 1, 2022): 133–37.
- Lawler, Mark, Francesco De Lorenzo, Pernilla Lagergren, Francesco Saverio Mennini, Saronas Narbutas, Grazia Scocca, and Françoise Meunier. “Challenges and Solutions to Embed Cancer Survivorship Research and Innovation within the EU Cancer Mission.” Molecular Oncology (July 1, 2021).
- P.M. Carrera, G. Curigliano, D. Santini, F. Meunier, et al. ‘ESMO expert consensus statements on the screening and management of financial toxicity in patients with cancer’ (May, 2014).
- Lawler, Mark, Kathy Oliver, Stefan Gijssels, Matti Aapro, Agnese Abolina, Tit Albreht, Sema Erdem, et al. “The European Code of Cancer Practice.” Journal of Cancer Policy 28 (June 1, 2021).
- Scocca, Grazia, and Françoise Meunier. “A Right to Be Forgotten for Cancer Survivors: A Legal Development Expected to Reflect the Medical Progress in the Fight against Cancer.” Journal of Cancer Policy 25 (September 1, 2020): 100246.
- Saul, Helen, Lifang Liu, and Françoise Meunier. “Call for Action to End Discrimination against Cancer Survivors.” Journal of Cancer Policy 17 (September 1, 2018): 1–3
- Picot, Jérémy. “Droit à l’oubli pour les malades de cancers: un risque relatif pour les assurances.” Assurances et gestion des risques / Insurance and Risk Management, 84(3-4), 153-163.
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